Contact

If you have any questions, please contact Pia Wintermark for more information / Si vous avez des questions, veuillez s'il vous plait contacter Pia Wintermark pour plus d'information.

Pia Wintermark
Division of Newborn Medicine
Montreal Children’s Hospital
1001 Boul. Decarie, EM0.3244
Montreal, QC H4A 3J1
Canada

Pia.Wintermark@bluemail.ch or/ou Pia.Wintermark@mcgill.ca
Phone / Téléphone: + 1 (514) 412-4452

 

Every donation is welcome / Tout don est le bienvenu.

If you want to donate to help this research to progress, please donate through the Montreal Children’s Hospital Foundation mentioning “NeoBrainLab/Dr Wintermark” / Si vous voulez faire un don pour aider à avancer cette recherche, donner à la Fondation de l’Hôpital de Montréal pour Enfants en mentionnant “NeoBrainLab/Dr Wintermark”

https://childrenfoundation.com/donate-now/

The Montreal Children’s Hospital Foundation is a non-profit, charitable institution / La Fondation de l’Hôpital de Montréal pour Enfants est une organisation charitable, sans but lucratif.

 

Tips

Tips and useful links for parents of babies who need hypothermia or cooling treatment after birth; birth asphyxia; cooling; hypothermia; hypoxic-ischemic encephalopathy; neobrainparents; neonatal encephalopathy; NICU; neonatal intensive care unit; parents.


1. Suggested home activities for the first 6-8 weeks of life, following discharge from the hospital

(To be incorporated into your daily routine with your baby at home, prior to your first appointment for occupational therapy)

Tummy time

Place your baby on his/her stomach, either lying on you with his/her head above your shoulder or on a firm surface with a small rolled-up blanket placed under their chest. The goal is for your baby to try to lift his/her head and turn her/his head to the sides. This will encourage your baby’s development of head control.

Supported Sitting

Hold your baby with one hand at the level of his/her chest and the other hand at the level of his/her shoulder blades. The goal is for your baby to try to hold his/her head in line with her/his trunk. Hold this position until your baby’s head falls forward. This type of sitting will encourage your baby’s development of head control.

Visual tracking

Have your baby focus on an object with contrasting colors (e.g., black and white, red) and move the object from side-to-side. Alternatively, place your baby on your folded legs facing you and have him/her focus on your face; then, slowly move him/her to the left and the right, so he/she can continue to focus on your face.

Auditory and language stimulation

Read books to your baby and speak to your baby in the language that is most comfortable for you when you are holding her/him, changing his/her diaper, etc.

Fine motor development

Place different textured toys (e.g., cloth, soft plastic, etc.) near your baby’s hands to encourage accidental reaching and grasping.


2. Recommended Positioning for the first 6-8 weeks of life, following discharge from the hospital

 When awake and alert

  • Have your baby lie on his/her back with rolled-up blanket placed under her/his shoulders and the hips to bring them towards the midline.
  • Have your baby side-lying with a rolled-up blanket placed behind his/her back.

When asleep

  • Have your baby sleep on his/her back without any rolled-up blanket and any restraint.
 

3. Useful links

  • Hope for HIE is a parents group for families whose children have suffered from birth asphyxia and who have been diagnosed with hypoxic-ischemic encephalopathy (HIE).  Their community is worldwide and includes parents of children with a wide range of outcomes. They provide a variety of support outlets, both in person and online, and “ensure that each person who is touched by this diagnosis finds a place they feel they can call home with support from real people who shared similar experience.”
  • The Best in Daily Life is a project designed specifically for families with children aged 0–2 years who are born with health issues. Its goal is “to provide information and practical advice regarding the baby’s development and behavior. It applies from the time of birth to life in the NICU to the joys and tribulations back home.” The information is divided into five sections: decoding your baby’s behavior, positioning, feeding, playing and interacting, and developmental stages. The goal of the program is for you to pick up on cues and better understand your child’s behavior. You will learn about suggested activities that stimulate your baby’s growth and development.
  • Being Born and Grow Up provides general advice for parents about child health and development. This website focuses on children from conception up to 6 years of age.